Nuelasta In the past 14 days, I've had blood drawn in the same arm, 14 times. I'm smiling today, because my arm is getting to rest for a week. This morning, I got to take my time knowing my doorbell would not ring at 9 am. My nurse doesn't need for me to be showered and chatty. But having her on the calendar has given me a schedule and a reason to get up. I get up, do some kind of excessive, shower, eat and drink and answer the door. Being in this study for the drug Nuelasta has given me a "job". Yep. I have chores. I have to take my temp twice daily and give some blood. Does that make me feel important? No. But it gets my drug paid for, when insurance won't. ($25,000 or more for my 4 shots) And it does give me some bonus attention, since my lab work is being carefully reviewed. I'm good with that. Augusta And I get "attention" from Augusta, too! She is delightful. We talk about our kids and the president and rain and wigs. She is a wig owner too, but that's her own beautiful braided hair! She's holding Ms. Donkey, my little wooden mascot... which is very silly, but she gets my humor. One other perk about having home visits, is the silly thought of a nosy neighbor watching. I secretly hope there's a "Mrs. Kravitz" who is coming up with some outrageous story about why a woman rings my bell each day. And I'm sure Mrs. K's imagination goes wild when she sees the man in the white truck, waiting on Sunday mornings for Augusta to hand over the brown box. Actually the box just holds the blood work that gets shipped to the lab. Augusta has to use a courier to ship on Sundays. Wow, that does make me feel important! Suspicious House But anyway, it makes me laugh to think my house could look suspicious. After all it was in August, 4 years ago, when the SWAT team arrived next door. There was a huge drug bust. We had no idea that the renters next door didn't sleep there. They just came to tend to the plants.. in the middle of the night... We were living next door to a grow house and had no idea! So, I doubt I have any nosy neighbors and there will be nothing to watch for a over a week. Maybe I should come up with something entertaining, just in case someone's watching!
2 Comments
Patti long
8/17/2016 03:41:14 pm
So I am glad to see that you have a smiling professional beside you. And a double high five for putting up with all that needle poking. And with a grateful heart shining through. (I hope have a listening ear for the frustrating times too.). You are lovely dear Beth. Shine on.
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Patti
8/18/2016 05:15:43 am
Thanks, Patti! Yes, I can't imagine if I'd had the poking, with a pro who didn't make me feel relaxed. I'm enjoying my break for a week, tho! Yay! Thanks so much for your encouraging words along the way!
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Not-So-Happy List
Cancer, Covid & Coronary... I started this complaining list/blog, in May 2016. I posted 200 gripes about my breast CANCER and then I was done. On March 13, 2020, I started venting all over again, when another disease (starting with a C) interfered with my life. This time it was the invasion of COVID and it affected every person. I ranted for a year, until I got my COVID vaccine in March 2021. CORONARY Artery Disease was the reason I restarted this blog on September 26, 2021. This time it was my hubby Don, who was dealing with a worry that started with the letter "C". Coronavirus and Cancer, Coronary Artery Disease! All are evil, but none can totally get me down... if I vent! I usually end up feeling a little more positive at the end of each post! Navigating This Mess! The most recent post is at the top, from coronary posts in 2022, back to cancer posts in 2016. To find past posts, look below the "Archives" section, to find "Categories". Archives
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